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NIH 2023 Data Management and Sharing Policy: FAIR & CARE Data

NIH Data Management and Sharing Policy effective January 25, 2023

Fair

FAIR Principles

 

Findable: Data and metadata should be findable and be assigned a globally unique and persistent identifier.

Accessible: Data and metadata is retrievable, as well as open, free and universally implementable.

Interoperable: Data can be integrated with other data and is interoperable with applications or workflows for analysis, storage, and processing.

Reusable: Data can be reused for other analyses, which requires richly describe data and metadata.

 

 

References:

https://www.nature.com/articles/sdata201618 

https://www.go-fair.org/fair-principles/ 

Care

CARE Principles

For Indigenous Data Governance

Collective Benefit: Data ecosystems shall be designed and function in ways that enable Indigenous Peoples to derive benefit from the data.

Authority to Control: Indigenous People's authority to control Indigenous data must be recognized and empowered.

Responsibility: Those working with Indigenous data have a responsibility to share how those data are used and support indigenous Peoples' self-determination and collective benefit.

Ethics: Indigenous People's rights and wellbeing should be the primary concern at all stages of the data life cycle and across the data ecosystems.

 

References:

Research Data Alliance International Indigenous Data Sovereignty Interest Group. (September 2019). “CARE Principles for Indigenous Data Governance.” The Global Indigenous Data Alliance. GIDA-global.org  (PDF)